Our Story

 

Now more than ever, we realize that every moment is special, to laugh often, hug always and love with all of your heart!  Thanks to each and everyone of you for helping us in every way that you have!

Happy not knowing what is to come....

December 9, 2016....our world would never be the same. On that date, Cooper, then 6-years-old, was diagnosed with a cancerous brain tumor-Medulloblastoma. Four days later, he underwent successful surgical removal of the tumor. In 2017, he received a combination of proton radiation therapy and chemotherapy treatments. He completed all treatments in March 2018. Although things have slowed down, our post treatment management is an ongoing process.

  • 3 doctors appointments to determine the presence of brain tumor Dec 9, 2016

  • 10+ hour brain surgery to remove tumor at Boston Children's Hospital Dec 13, 2016

  • 3 months of rehabilitation at Spaulding in Charlestown to relearn how to walk/talk/swallow

  • 30 rounds of radiation treatment at Mass General Hospital, last treatment Feb 28, 2017

  • 9 rounds of chemotherapy at Dana Farber and many overnight hospital stays and transfusions at 9NW at Boston Children's Hospital.  Last chemotherapy Feb 28, 2018

  • MRI without "sleepy medicine"

  • 2 years post treatment with "No Evidence of Disease" (NED)!!!

~Treatment for Pediatric Brain Tumors is never "done." Ongoing engagement with endocrinologists, audioloigists, neuro ophthamologists, psychologists, radiologists, primary care physicians, etc. are required to manage late side effects of treatment, and to monitor for any other cancers.