FREQUENTLY ASKED QUESTIONS
Who Is Closer to the Cure?
We created Closertothecure.org as a fundraising and information sharing vehicle in support of Medulloblastoma and pediatric brain cancer research. The site is dynamic; adding more information and fundraising events over time.
Closer To the Cure is not a research foundation. We have partnered
The Carson Leslie Foundation cureMEdullo (CLF) a registered 501(c)3 national childhood cancer charity foundation (Tax ID # 01-0945033) to route our funds raised toward medulloblastoma research.
How do your donations help?
The complex Medulloblastoma treatment protocols are representative of the areas we will focus on for fundraising; Early Identification, Pediatric Neurosurgery, Radiation Therapy Planning & Treatment, Precision diagnosis, Hematology & Oncology Therapy Protocols, Rehabilitation and Nutrition, Family Mentoring & Support, Integrative Oncology and Legislative Action.
We have partnered with CLF as they have made many accomplishments for pediatric cancer HERE
Who is Alex's Lemonade Stand Foundation (ALSF)?
Alex’s Lemonade Stand Foundation (ALSF) is a registered 501(c)3 national childhood cancer charity foundation dedicated to raising funds for research into new treatment and cures for all children battling cancer.
ALSF, through their scientific advisory and review boards carefully selects projects and vets grant applications to make sure the funding supports the most substantive and critical contributions to the field of childhood cancer research. The ALSF "Hero Fund" program allows families to fundraise for specific research areas. Closer to the Cure is an ALSF Hero Fund.
What is Medulloblastoma?
Medulloblastoma is the most common family of pediatric brain tumors. The tumor most often originates in the cerebellum or the posterior fossa (back of the brain). Like other brain tumors, Medulloblastoma can spread to other locations in the brain and spinal cord.
Treatment consists of surgery through the back of the head to remove the tumor, followed by radiation to the brain and spine (if the child is old enough), and a cocktail of chemotherapy drugs over 6-15 months depending on the specific type of tumor.
Prognosis is highly varied but in aggregate viewed as favorable. Certain genetic and tumor location profiles can have poor or favorable prognosis, however these markers account for a minority of children diagnosed with Medulloblastoma today. Most kids are "in the middle" - mostly because we don't currently know enough about how the tumors work to classify them.
For children that do survive their Medulloblastoma, they must wrestle with the late-onset effects from the aggressive treatment regimen. Treatment that may have been more aggressive than needed if more was known about the tumor types. Surgery, radiation and chemotherapy each bring their own risks and complications as survivors grow up. These complications can include neurological deficits, hearing loss, growth & hormone imbalances, reduced fertility, and other cancers.
Who is The Carson Leslie Foundation cureMEdullo?
Carson Leslie Foundation (CLF) #cureMEdullo is a registered 501(c)3 national childhood cancer charity foundation. The only foundation dedicated to MEDULLOBLASTOMA research. CLF has an extraordinary impressive Board of Directors and Scientific Advisory Council that governs and oversees the affairs of the organization.
How do I become an individual or corporate sponsor?
Sponsors make our world go round! We are excited to offer a range of sponsorship opportunities and a chance to be recognized for your wonderful support.
For 2020 we are offering a different type of sponsorship for our virtual event-you can become a sponsor for a specific item or cost. ie. painting kits, custom aprons, shipping costs, virtual access fees, etc.
to print the sponsorship form.
What is the 2020 Virtual Event and how does this work?
2020 has been a year of the unknown for many, so we decided to go virtual. Closer to the Cure will be organizing a virtual event for participants to join in the comfort of their own home. We have some generous art teachers that will lead the live tutorial and teach everyone (all ages) to paint. All funds raised from ticket sales and donations made will go directly to research.
visit our event site, click purchase tickets, and once transaction is complete you will receive the online link to connect to the event.
What supplies do I need for the paint night events?
-computer & internet access
-primary color acrylic paint set
-3 paint brushes
-paint pallette or plate to blend colors
-table easel (if you prefer to paint this way or display)
- cup with water
-snacks and drinks